Lots has been happening and I have been very remiss on posting. Sorry.
Ben Update
Ben's second IVIG treatment series has started. Today was day 2. So far, so good. Actually really good.
Usually the IVIG treatment brings improvement at first, then gradually the improvements goes down. Each series brings more improvement than the last one and the improvements goes down less with each successive series.
Yesterday and today Ben was very clear, no pacing or other symptoms.
His 14th birthday was today, what a way to celebrate.
He is scheduled for about 5 more treatment series spaced 6 months apart.
Ben Update
Ben's second IVIG treatment series has started. Today was day 2. So far, so good. Actually really good.
Usually the IVIG treatment brings improvement at first, then gradually the improvements goes down. Each series brings more improvement than the last one and the improvements goes down less with each successive series.
Yesterday and today Ben was very clear, no pacing or other symptoms.
His 14th birthday was today, what a way to celebrate.
He is scheduled for about 5 more treatment series spaced 6 months apart.
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