Wednesday, January 28, 2015

Ben Update!


Ben has been on IV since 10 am and this afternoon the IG part of IVIG was started.  So far he has been great.  No pain, no side effects showing up so far and good nurses.  The church members dropped by with dinner and I am off to pick up Luke!

It was a long day for us but the worry and anxiety was what made it hard.  So far, so good.   And no raging which is what happens to some PANDAS children's reaction to the medicine in the IV.   We have experienced the raging a year ago to a reaction to a medication for anxiety.  It was painfully terrible for all, and very scary.

The IVIG will go on tonight till about 11pm.  Then it starts again in the morning.  I am just so thankful it has gone so well to this point!  He was even so more "with it" than usual after a few hours in.

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