Friday, January 30, 2015


BEN UPDATE:  Today was the last day of the IVIG.  Ben was really alert and calm, no real PANDAS symptoms.  And his voice seems to be stronger and clearer.  There is no pause to process a question, he just pops out with the answer!  No zoning!  Now there will be some days of watching for side effects, nausea, vomiting, violent headaches, joint aches and pains.  They figure 4 days to watch for these effects.  So far none.

I left around 3pm, went home and slept for 3 hours.

The real highlight for the day was when I walked in his room and he said, bright and cheery, "Hi, Grandma!"  That was a gift!  Usually he is zoned out and doesn't even give you a hint he knows you are there.  

It is hard to acknowledge hope that this is turning to bring him back to us.

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